Saturday, June 29, 2013

I’m proud to say I’m a Copaxone girl!


Most people that are sick pray and pray that their tests results come back normal, or whatever is wrong with them is no big deal. I just wanted an answer! I knew something was wrong with me, but I didn’t know what it was. I was fighting a ghost. That’s probably the scariest thing imaginable. But from the time I received my diagnosis, I knew what drug I wanted….

I had pretty much self diagnosed my issues and researched everything possible about Multiple Sclerosis. When the words “ You have Ms “ left my doctors mouth my reaction was “ I want Copaxone “. I was fully aware it was an injection, one that you have to give your self daily. I wanted it!!! I had read great reviews on this drug. It was my ONLY option as far as I was concerned.

When all the paperwork was squared away, Copaxone sent a nurse out to my home and she taught me exactly how to give the injections. The do’s and don’ts you could say. She even coached my mom on how to properly give me injections, which came in handy early on when I barely had function of my hands. Since being on the drug, which is going on 10 months now…I feel great.

As with any drug there are some things I don’t particularly like. But there are things that I love. A big check in the plus column is I haven’t had any attacks! No flares, which makes for a happy girl. I take my injection everyday like a good little MS patient and I truly feel as if I’m actively fighting this demon. I hate the bright red itching lumps that pop up on my injection sites, those are no fun. But hey, that’s the price you pay sometimes.

Shared Solutions, which is the manufacturers of Copaxone, are wonderful. They call every month, without fail. Ask how I’m doing even! My answer is always the same….I’m Okay. I don’t think they would appreciate….I feel pretty shitty today! They make sure I have enough medicine, alcohol prep pads, band aids…ANYTHING.

Who does that? Very few anymore this day in age!! I’m thankful! Not to mention the list of side effects is short and not very serious…this is my drug of choice. I’m proud to say I’m a Copaxone girl!

Friday, June 21, 2013

MY FAMILY!

LAYNEE
LANDON

That's me and the man! Lol

Thursday, June 20, 2013

I’m sick & tired of being sick & tired. I feel like bitching & damn it I intend to do so today


You know what pisses me off ?!!? Shitty days! 
With MS, you’ll have quiet a few of them…

The thing about shitty days for me is they come right in the middle of some good weeks! I’ll do awesome for weeks, better than ever. No balance issues, walk like a “normal” human being…even the muscle spasms will subside. 

Then BAM! Out of nowhere here comes a damn shitty day! You know the one I’m talking about?! You wake up looking around, thinking to yourself, do I really need to get up and use the bathroom? It seems so far away! You can feel your legs trembling already, yours arms are tingly and tight, and no matter how much or how little you slept…your STILL tired! 

It’s on these days that I remember, whether I want to or not that I have

Wednesday, June 5, 2013

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